What does childhood mean to your autistic child?

The scene plays out a million times. Parents, the developmental pediatrician, the child who is not hitting social milestones. The tears. I’ve been there.

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The advice. Medications. Therapies, Visits, Appointments. One breeding another like Mickey in the Sorcerer’s Apprentice, ceaseless brooms and buckets. They want to help but they exist in a clinical setting and who plays in an exam room or a designated therapeutic space? By definition play is organic, unbounded and engaging. fred rogers quoteDirected play with a counselor moving towards a play objective is not play. It is an intervention. I don’t care how the room is dressed up with balls, color and swings.

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I had memories stir inside me, I related.  I rejected my fear about the word autism and reached back into my past for tools that I could use to socially advance my child without making him feel less than.

If you require therapeutic language, call it “immersive home based play therapy”, in my words “a 70’s childhood.” Every parent draws from personal experience–and mine was the backyards of my neighbors at kellysneighborhood and staying outside in all weather. My successful experiences relied on the outdoors, a pet, cousins, siblings, sensory engagement.

Sensory wonder like the clattering of a train on a long Amtrak trip to Florida, pressing my face against a cold window. Splashing in water or the smell of a barn. I didn’t have a barn. I only rode a train twice. I had significant social delays, these delays existed as an acknowledgment by the adults in my life but they didn’t talk about it to me and they didn’t treat it directly with a doctor. My parents despaired of it and lived with it.  mom and i - CopyThe only thing they could do in the 70’s was hope I grew out of it. This was not an amazing attitude and “growing out of it” took place to a degree but what really helped me was seeing my own child and giving words to what challenged him and what strengthened him. Because he was the same as I was. We were both on the spectrum. I made more social strides parenting him than I ever did before I knew what neurodiversity was.

Every trait has a flip side to it. If a child has a strong negative behavior, flip it around and look for the strength. My social weakness enabled a hunger for sensory play. I

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after the monsoon

soaked up smells and sounds. The pleasure that sensory play gave me was the foundation for my ease and slow progress. Richard Louv writes about “fascination” a suspended moment of sense engagement. If you ever laid in the damp grass on a sunny day and looked at the world from grass level, felt it tickling you, that’s fascirainnation. Watch ants wending along a sidewalk towards a crumb or rolled over, shielding your eyes and following the flight of a bird, that is fascination. It has no real point and involves losing track of time and just being.

Fascination is fabulous. Kids are naturals at giving into fascination.  Most adult put a stop to it, insisting on staying out of the dirt, getting up, get going, stop it. circle spinning thing - CopyThese same adults will wrap back around and try to find that gift again. Maybe they forest bathe. Maybe they will Instagram a flower or a view. It is work to shut your adult brain off and just be. It’s even more work if you weren’t allowed a chance to do it in the first place. Kids can do it, but the social world demands that you direct your energy towards a goal. And that’s my problem with directed interventions and play therapy. It’s so dry. It kind of sucks.sprinklers

The kids that hang onto fascination the longest are the country kids. The farm kids. Think of an adult that grew up playing outside. Did that person ever say “I wish I had spent more times indoors doing activities. My time outside was a waste?” I am talking to  you if you are a parent that has a reoccurring appointment with a developmental therapist. I gave that world a hard pass. I walked into those spaces every few years and I always thought “This place is a bummer” I’m not giving my son over to this scene and dragging him out of the house to hang out with these well meaning, educated neurotypical people with their milestones and objectives.

balloon - CopyI didn’t have a farm, I was advantaged at tapping into the sensory world but my parents and teachers didn’t have language to value that. It didn’t mean anything actionable. The payoff was years down the road or simply something that gave me energy to make it through the day. The way I got the energy was invisible to everyone, even me. I didn’t know that walking the block delivering newspapers alone or riding my bike was filling me up. I just know I liked the smell of the newspaper, the sound of the wind when I pedaled. The sensory world has value and delight. It wasn’t a disaster to fail to fit in–it was just a part of my life. My life included social fails and sense triumphs.kerry and horse - Copy

Most times I did not meet the standard of average behavior with people. I had meltdowns and was contrary. I didn’t have a solid group of friends. For the bulk of my life, my friends were short term. Once a person got to know me, the relationship faded away or I was immediately rejected. That’s kind of how it is if you are on the spectrum and out in the world. Even with this, I played. I was allowed to play, it wasn’t taken from me and replaced with confined society and directed activities.

At the base of everything I write, I insist every child deserves to feel safe, accepted

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this cloud looks like a bunny

and competent. I took my block of development and turned it around. What worked for me, what got me to where I am today, with a family, with friends, with a job I like and society that suits me personally and doesn’t fall outside of a social norm. I have an independent life and when I write about being on the spectrum that isn’t a label I walk around with the way my son was labeled in grade school and walked around with it every day. Having these insights compressed our timeline for development. We made big strides and we did it by throwing in challenging experiences only after loads of sensory inputs. He drank from the well of play and took on things that defeated him on a play less day.

Filling our “schedule” with playful days meant saying no to doctor appointments and therapies that hog the autistic child’s calendar. Doctors can act as an ally but at the end of the day a doctor will only give you a few minutes and then typically 

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tasting honeysuckle

recommend more doctors, interventions and in some cases medication. Meeting the doctor was always time spent doing things that stressed my son out. Traveling for an unappetizing appointment, waiting, an unappealing exam room and for a brief conversation with someone that did not know my child in any setting outside of that office. The value of a doctor is that they see a range of children like mine. This viewpoint did not offset the agitation and stress of setting aside a block time for this interaction. 

If autism is outside your sphere of experience it is natural to look for an authoritative voice. For the first time in my life, I am grateful for my struggles, my humiliations, my failed relationships, job loss and late developing cultured behaviors.
brady at camp - CopyWe relied on his school for the experienced voice about what they were seeing and what we could do to get us to a place where our son felt safe, accepted and competent outside the home.
Our mantra was “you have to live in this world” and our hope was that he would grow up as an independent adult with a life that fulfilled him.
The inclination to treat autism like an illness is confusing and counter to the idea of developing a sense that you are an average human being with average feelings.
neighborsThe word “average” is undervalued and stigmatized to a degree. When I used the word “average” to describe my child, peers and family members would cringe and interject, ‘he’s not average’ Let me be clear, it is not an advantage to be treated as exceptional. Exceptionality breeds temper and a sense of entitlement. In our family, exceptionality is not a pathway to fulfillment because to get it, it requires social accommodation. Reliable social accommodation is found in small circles. Your  little corner of the world. Stray outside that boundary and people are insufferable to someone that lacks the ability to adapt, strategize. Society demands that you cope with discomfort, change, indifference.

grandmas pool - CopyChildhood is precious, a rare time and all too fleeting. Childhood is your chance to fill your little person’s tank with joy, fascination, sensory play and the tools to socially advance. Play is everything. Fight against the forces that take your child away from being a child and doing what children do best, in the place they do it best in.

A visit to the Mesa Typewriter Exchange

Because I am impulsive, a middle child, did not grow up getting presents and swag bags every day of my life just for being a kid, I have these obsessions with acquiring books and typewriters. More than I could reasonably use.

I have the typewriter of my dreams, the Hermes 3000.

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Sweet, right? Seriously? I want to eat it. If you scratch and sniff the picture it smells like mint cause it’s that minty fresh.

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If you haven’t been to this wonderful wonderland, please take some time to visit. But buy a typewriter because it is magical, like having a convertible.
 

The Impossible Sight of a Ship

Travels with the Blonde Coyote

First Flight by Sarah McRae Morton First Flight by Sarah McRae Morton. 6 ft by 9 ft! My favorite from this show.

Apologies for the lack of posts lately. I stashed my dogs and my rig with friends in Seattle and flew east for two weeks. First I flew landed in Maine to attend the opening night of my sister’s show “The Impossible Sight of a Ship” at the Dowling-Walsh Gallery in Rockland, Maine. Sarah has been making her living as a painter for over a decade now and her paintings never cease to enthrall me. I’ll let Sarah’s words and paintings speak for themselves. Here is her artist’s statement:

A family tie brought me to Maine. I have returned, following windy curiosity to see whereseafarers fed my favorite painters, find the “Grim and Wild Maine” described by Thoreau, follow water veins he coursed with Penobscot guides, and hear the wrath of the ocean on the fortress walls…

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Joshua Chamberlain, Little Round Top, and the Memorial That Never Was

And that is three — could reblog these forever — instead remember to read / show the kids before we go back to Vincent’s Spur

The Blog of Gettysburg National Military Park

A few months ago, prior to the arrival of the frigid weather we are now enjoying, I had the pleasure of bringing a group of visitors around Little Round Top. It was a fairly predictable tour. We visited the requisite sites as we made our way south along the crest of the hill, namely the Gouverneur Warren statue, Hazlett’s Battery and the 44th and 140th New York Monuments as we roughly followed the progress of the battle on July 2nd. It was a good forty-five minutes before we made our way into the trees and down a tail-like ridge known as “Vincent’s Spur” which runs across the southern face of Little Round Top. Our final stop of the program was at the 20th Maine Monument, which is situated on a shelf of rocks well below the summit and nearly on its reverse slope.

I usually stop here…

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Gettysburg 150th – July 4 Battlefield Experience Programs

Because this is one of our favorite places to visit. I want to know as much as I can.

The Blog of Gettysburg National Military Park

    Alexander Gardner, Timothy O’Sullivan and James F. Gibson were photographers. Gardner had managed the Washington, D.C. branch of Matthew Brady’s photographic gallery from 1860 to 1863, when he left to establish his own studio in the city. When news of the battle at Gettysburg reached them, Gardner and his team assembled their equipment and set out for the battlefield. They arrived on the battlefield on July 5. Of the sixty negatives the team would produce between July 5 and July 7, when they departed, twelve, or twenty per-cent, were created on the farm of George Rose. The Rose farm, which is about two miles south of Gettysburg, off the Emmitsburg Road, was the scene of very heavy fighting on July 2. Rose’s farm included the infamous “Wheatfield.” But much of the heaviest fighting occurred in Rose Woods, which bordered the Wheatfield to the east, south and west. By the…

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“The Home of a Rebel Sharpshooter” Revisited, Part 1

The Blog of Gettysburg National Military Park

One of the most iconic images of Gettysburg is the photograph of a deceased young Confederate soldier lying behind a stone barricade at Devil’s Den. This graphic image was first published in 1866 in Gardner’s Photographic Sketch Book of the War, a collection of wartime images taken by Alexander Gardner and his team of photographers. Entitled “The Home of A Rebel Sharpshooter, Gettysburg”, Gardner describes the melancholy scene as he discovered it with the young sharpshooter lying prone behind a stone barricade, and wondered in his narrative if thoughts of home and loved ones filled the young soldier’s mind as he perished.

1-home of Rebel Sharpshooter “The Home of a Rebel Sharpshooter, Gettysburg” by Timothy O’Sullivan (Library of Congress)

There is more to this tale of course, but suffice it to say that we now understand the scene depicted in the photo was staged by the photographers and was not, as Gardner claimed in…

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Top Ten Novels in Verse by Katie Strawser

This post made my entire to-read list and introduced me to a new genre-novels in verse. One way I struggled to connect with my kids was through the generation…they are visual and real time and diverse. They move faster and can handle more but sit less. How can you make books relevant to today’s children? These novels seem to answer that question.

Katherine Applegate is featured here two times, we love her Animorph series, it is a super well done middle grade series. Kind of a dark horse, it’s out of print but you can get copies used or as e-books. This series has hooked many a wimpy kid fan on reading. Very well done and obviously she has talent to spare. Load up your library hold list or your e-reader.

 

Top Ten Novels in Verse by Katie Strawser.

My manifesto: Why I fight for children to play

I had children late in life (sort of). I had my first child at 35. I was 38 with my second. When I started working in a school, I realized I was a generation older than many parents.

Like most people, I parent based on how I was raised. I was raised in the 70’s. My parents worked. We had babysitters and community camps, and once my oldest sister was old enough to be left in charge, we were on our own. Latchkey kids. Old enough to be in charge is 4th grade, btw.

My mother lavished us with books.

My mother lavished us with books.

I had a paper route that I inherited from my big sister, so I started delivering papers and collecting money from strangers when I was 7. I was a very busy babysitter by the time I was 9. We lived in the suburbs, across the street from a low-income apartment complex. I spent most of my time outside with neighbor kids or alone in creeks, dumpsters, alleys, graveyards, the backyards of neighbors.

One hot day we spent the day looking for the grave of a cat in the neighbor’s yard. Around dusk, the teen daughter chased us from the yard. She said, “What are you doing? We said “Digging up Simon” She burst into tears and told us to beat it.

Kids can be horrible. The storm culverts under city streets.  I was not athletic and did not have any sense, but my parents worked. That is how it was for us.

I know a little bit about not fitting in myself.

I know a little bit about not fitting in myself.

My house was full of books, I read whatever I could find, preferably what I was not supposed to find. (Flowers in the Attic) or never caught (Harold Robbins, my dad’s Playboys). I watched the afternoon soaps with our babysitter Mrs. Murphy, a tragic figure with a moochy grandson. She smoked the entire day, game shows all morning, soaps in the afternoon. She ignored us. Because she did not yell and was not drunk, it felt like she was attentive and kind.

One snow day, Budd Dwyer killed himself on live TV. Crazy pants.

I read and stared and inhaled smoke and watched soaps and played Atari and rode my bike everywhere and fought with kids and collected coins and stray dogs and was a giant weirdo. It was the best childhood ever.

Fountains for wading

Fountains for wading

I learned so much. It made up for my Catholic grade school, which was so dull I was ready to die. I was always reading a book under my desk and being told to stop, the only person who gave me free rein was the grumpy librarian Mrs. Schupp who was never grumpy with me and would let me have anything I wanted all the time.

The two greatest weeks of my school career were 1.) when my appendix ruptured and I was in the hospital for a week and overheard a nurse say I COULD HAVE DIED (this thrilled me to no end and actually still thrills me now since I did not die, it was almost as good as a witness to my own funeral a long time fantasy of mine that I loved in Tom Sawyer) and 2.)

When our local nuclear reactor threatened meltdown and women and children were advised to evacuate. (A rare family vacation). We decamped to Allentown. I played with her collection of Avon bottles and carousel horses and her awesome toilet paper covers that looked like Barbies in crochet ball gowns. Her house had all the good stuff that I longed for with my jealous, covetous, too many sisters to compete with heart.

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I was never ever ever ever ever going to get married or have children. Never. I was going to be a queen and have all my stuff and a million books and a dog and a convertible and go live in a big city and fill my shopping cart with candy every time I went to the store. That is precisely what I did until one day, when I was 29, I met Mr. Dreamy and realized he was the one person I wanted to have in my life forever and wondered how I could make that happen because I was not an easy person to be around, I was very selfish and ridiculous and chaotic, but I was thin and pretty and smart and had money so that sort of masked what a nut I was..and we fell in love and got married, and for the first time in my life I started to work hard to learn how to be good and kind so Mr. Dreamy would be happy living with me.

Both boys are overjoyed to reunite with their dad. We had been on the East Coast for two weeks before he joined us. This picture was taken at the airport.

Both boys are overjoyed to reunite with their dad. We had been on the East Coast for two weeks before he joined us. This picture was taken at the airport.

We were married very quickly in fact…just four months after our engagement. I didn’t want him to change his mind. I asked my bridesmaids to wear whatever they wanted as all eyes would be on me, I arranged for them to picket my wedding at the state capital, Bloggess has nothing on me with her dead animals. I had picketing bridesmaids…as a  middle child, I wanted to see if people would really, really really do anything I wanted on my wedding day. And they really, really did, and I loved it. An extraordinary day for me.

Haters only hate the people they can't have or the people they can't be

Haters only hate the people they can’t have or the people they can’t be

Now we lived in DC and worked and were spendy (me) and happy (us), and life went on until everyone started to die, my grandmother, my stepfather, my beloved dog. And I thought. Wow. The only thing that seems to matter is children; perhaps we should have children? And like all normal people with normal mindsets, I reached out to a girl I did not know in real life who I knew from an online community was super nice. She had baby twins and a lot going on. I asked if I could bring her meals and help once a week for a year. And she said yes, and I ended up babysitting on Wednesdays for a year, and at the end of the year, I thought, yes, I can do this, I can have a child.

At two months, smiling at his dad.

Angelina at two months, with Mr. Dreamy.

Mr. Dreamy said we could have two. Meet Max.

My favorite was watching Max build. But that's just because I'm his mom. I love when this look comes out.

My favorite was watching Max build. But that’s just because I’m his mom. I love it when this look comes out.

Then I actually had one child inside me growing, and I changed my mind back to one, but he talked me into two. Now we have our two little freckle-faced cuties. And it was definitely the right idea if I had only one child, I would still be pureeing her organic food. Having two lowered the bar on perfection. Looking back, I value mistakes, independence, even a humialtion or two. If you can survive an independent childhood you can survive many things later in life. And I value play because I know the only way I learned anything was when I was interested and busy. And school was not exciting or busy. And being told what to do and asking to not touch things or explore makes me cringe for my kids. I assumed that kids would all play the same, no matter what year they are born, but sadly this is not the case if you are middle class and you want your child to play in a world where kids all have homework and tests and tons of private lessons and camps, you have to fight for it, you have to find your tribe and you have to work very very hard to let your kids play. Because it seems so many things are trying to make them sit still and stare.

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This is why I fight for children to play, because it is wonderful and it is not as easy to find it as one would think. It is disappearing like our natural world, and unless you look very hard, you will miss it. I don’t want people to get hurt, but I don’t mind when people make mistakes or are embarrassed or wasteful if it makes a lightbulb come on. I’m still a work in progress myself, and I might be wrong; I only have one go at it, but Mr. Dreamy is by my side, and he mostly agrees with me, so even if others in my life think I am a little over the top (and they are right) this is how I came to be how I am. I am a product of my time and circumstance. How did your childhood inform your parenting?

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k8librarian reboot

I waste time writing in my head when I could be writing here. I think I should have a coherent page that makes sense, neatly branded with a color palette and graphics. A good headshot.

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I think if I had those black glasses that everyone is wearing and good eyebrows I could hold my own online.

Today K8librarian relaunches as my personal page in this quiet way to the 11 people that read my page and hopefully the habit of tending this page will yield the other features I want. My husband and I both work from home in virtual offices and my boys go to a school I love. For the first time in 9 years, I won’t follow my boys around all day, Brady does not need me anymore, he can advocate for himself (hopefully!!). Max has a teacher that brings out his best, he has daily gym, he loves being a big kid, his school has a new building with a focus on sports.  He is in a good space, as long as he doesn’t turn around.

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Max was completely freaked out when he got his kindergarten class pictures and this was in his folder. I said, good thing you did not turn around. It scared his friends too. So satisfying.

I’m no longer a school librarian, so I can write openly here. My son Brady, is rocking it–closing gaps, hanging out, his expressive language, security and development is awesome. He’s fine, no more special needy than any other child with one area of challenge as he manages everything else on his own. He’s done his work and we have worked REALLY hard, all of us, to get him to learn the things from intention that he needed to learn. I can write bi-weekly about what I wake up each morning thinking about.

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inside, I will always be a librarian. Inside, there will always be something a little bit wrong with me.

I spend an enormous amount of time around topics like 21st century learning, our changing home, healthy eating (my downfall), raising the best kids I can the first time around, childish play, family travel, neurodiversity, reading, working from home, keeping up with tech, trusted voices, mental health, creativity and most especially change. I love change and I welcome the brave new world my children will work and live and love in. I’m concerned about their education, their health and their financial prospects with globalization. I’m going to use this space to write about those things, every day and see where the conversation takes me. In the end, all I know is that my brain is overflowing and sometimes I feel like I will go crazy if I don’t let some of these ideas out to get a perspective.

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I hope you enjoy visiting my page and participating in the conversation because I love a good exchange of ideas. Special thanks to my friend Denise for her graphic wizardry, who has always had something a little bit wrong with her and thus has stayed friends with me for many many years for no other reason than we relate to each other. Or else she just really really likes people named Kerry.