What does childhood mean to your autistic child?

The scene plays out a million times. Parents, the developmental paediatrician, the child who is not hitting social milestones. The tears. I’ve been there.


The advice. Meds. Therapies, Visits, Appointments.


The googling. I won’t even go there, it’s self explanatory, it is just what you would do if someone said anything about your child.

But in this case, I had memories stir inside me.

And I related.

 And I took the road less traveled.

And you can call it “immersive home based play therapy”

or you can call it “a 70’s child”

 with doctor appointments that drain his energy,
 confuse him
 and make him meet a million young OT’s that are bored and doing boring things.
 In weird strip malls.
 And crowded chambers.
 With spreadsheets and stuff you can touch and stuff you can’t touch.

And what you learn is what it means to go to the doctor.

 Instead of opening your door
 And running outside

and playing with your friends

 as best you can
 in your own way.

So I told the doctors No thank you.

No thank you Autism Speaks.

 No Thank you Autism Awareness.Thank YOU Miss Jodi.
 No Thank you ABA, no thank you trip for more testing in Scottsdale.
 Meds? Growing child? In our case, no thank you. Am I on meds? Yes I am.
Do my kids know? Yes they do. Do I grow two inches every six months? No. Is it about dosage? yes.
 Do I know what is going on at your house? No.
 Am I an expert?
 Yes and No.
I’m an expert on my child and my life and I’m fat and I’m in my 40’s and I am all done with professional advice that is not grounded in reasonable result.
We do speech therapy, we let our school help. The classroom teacher is HUGE in our world.

And kids. And nature. And loads of play.

And guess what, thanks to my sisters, my moms, Papa, teachers, school, other kids, it’s working.

No thank you, you only get to be a kid once and this particular kid, the one I have, is not going to spend the bulk of his week at appointments.

And it was really hard and wore me out and you know what is right for you.

 Don’t forget, you know what is right for your child.
Follow your heart, look at what is going on and don’t be afraid to turn that fat autism pipe off and just let it drip a little bit into your house and remember,
 every child is still a child. And childhood is precious and rare.

One thought on “What does childhood mean to your autistic child?

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google photo

You are commenting using your Google account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s